There is a group on Facebook that is trying to get Oprah to do a show about RSD. How amazing and helpful would it be to get that worldwide recognition from Oprah doing a show about our painful disorder. The group is on a tight deadline to gather information and put together a "story package" for the Oprah people. They have to be ready by the end of July, and that is only three weeks away!
Here is what they are looking for.
Detailed stories of how you acquired the disease, how long it took to get diagnosed, what you have tried as treatments, medications, etc. success stories, etc. Contact information for the stories so that they can be verified.
The show pitch with contacts, names phone numbers, experts, medical research, websites, gut-retching stories, personal triumphs, etc.
Please visit their group page on Facebook! http://www.facebook.com/board.php?uid=12539620428#/group.php?gid=125369620428 Or you can email smdonnell@comcast.net to help the cause!
Love, Prayers, and Gentle Hugs
Marti Ann
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